Will Labour Offer Any Protection to Disabled People

Will Labour Offer Any Protection to Disabled People

 

Pat’s Petition is going to Westminster to find out.

 

After weeks of waiting – sorting out the logistics of travel to London – PP finally has a date for meeting with Liam Byrne MP, Labour’s Shadow Work and Pensions Secretary. Wednesday 6th February will see five of us at Westminster.

 

This meeting could not be happening at a more crucial moment in the long, sad history of this persecution. Because there is so much visible distress and so much suffering is now happening in real time in the public arena – before the eyes of the nation – people are beginning to see through the spin and myths – and see the truth.

 

There were two very serious debates in Parliament last week. In the debate called by Michael Meacher on WCA and ATOS – MP after MP queued up to recite the litany of appalling cases that they had seen in their surgeries. Thank you Michael.

 

In the debate in the House of Lords, motion proposed by Baroness Hollis, Lord Freud showed once again that he does not care.

 

The Centre of Welfare reform also released a report this week, How the cuts affect disabled people PDF.

 

So Pat’s Petition is going to Westminster to talk to Labour. We are hopefully going to finalise arrangements for an Opposition Day debate calling for a Cumulative Impact Assessment. Someone has to measure and record this persecution. Looking the other way and saying it is all too difficult is no longer an option.

 

This night of a thousand cuts cannot carry on unchallenged. Disabled people, their carers, families and friends cannot take any more. The financial stress is overwhelming and the emotional stress is more than we can bear. The public are on our side now that the myths are exploding and they can actually see what is being done in their name.

 

 

 

So we are going to ask Liam what Labour will do to help us.

 

What will Labour promise us to protect us?

 

 

 

How you can help

 

It is vital you lobby your contacts across all Parties; stress how much you/your members need a Cumulative Impact Assessment undertaken.

 

Send us a supporting statement a.s.a.p. No later than Feb 1st of why you think so. This will be shared across social media platforms so more people can see your concerns.

 

We will also print them to take with us when we meet with Liam. O

 

We look forward to your response.

 

Pat

x

 

patspetition@gmail.com

 

A Guide to Supporting Rape Survivors

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My main reason for writing this post is because I want to offer some suggestions for those who are supporting someone who has been raped. A lot of mistakes had been made in the way people responded to my experience, but I had a lot of positive responses too and I’d like to share these ideas to help others avoid the pitfalls and to aid their support. This post will not cover everything, and it will not be appropriate to all situations, as I have already outlined, people respond to rape in a variety of ways, but it should at least be able to serve as a foundation on which common sense and logical reactions can spring.

 

Medical

As soon as I woke up the morning after I was raped I phoned a good friend. I burst into tears as I told her what happened, meanwhile my friend didn’t panic but stayed incredibly calm and logical. Her strength and rationality meant that I could rely on her to help me to keep going. She told me that above all else I had to take care of my body. Taking care of your mind is a long process, the primacy of the body is therefore of more immediate importance. I didn’t feel up to going to the GUM on that first day, but I did go to the chemist and request the morning after pill. I am not saying that this is the right plan for everybody but it was for me. A pregnancy following rape brings with it a whole new level of trauma, yet in the emotional state I was in it hadn’t even occurred to me to consider it. I am incredibly grateful that my friend considered this and made sure I thought about my options. When you ask for the morning after pill at a chemist you are expected to have a consultation with a pharmacist and to pay for the medication. My experience of this could not have been more positive. The pharmacist was extremely sympathetic and supportive. I cried as I briefly outlined what had happened, I was brought a cup of tea, offered tissues and the fee was waivered.

 

Following on from this is a person’s decision to seek medical advice.  Please do not push someone into this until they are ready. It is important to outline the facts but it is a very personal choice when and if to access this support. I would recommend it but do not force it. Once someone has had their power stolen from them through sexual assault, removing their power yet again simply compounds this. It is extremely harrowing for someone who has experienced rape to have an internal examination. Offer them the support to attend their appointment with them. I had to go through mine alone and it was extremely distressing, although I could not for a second fault the GUM staff who were entirely sympathetic throughout the process.

Although I have stated that you should not push a person into seeking medical advice it may be helpful to provide them with the following data:

Drugs like Rohypnol can only be detected for up to 48 hours (with a urine test), other drugs may have a shorter period in which they can be detected. This can be important evidence if a person should wish to pursue the matter with the police. More information can be found here: http://www.sascwr.org/files/www/resources_pdfs/date_rape/Date_Rape_Drugs-categories.pdf

If someone is raped and wants to pursue the matter with the police it is helpful if they do not wash, brush their hair or change their clothes before accessing support. The police use a rape kit for gathering evidence and therefore this aids in a successful conviction for rape. As stated before though, please do not force a victim into doing anything they do not want to do.

Semen can only be collected for a short time after rape. I believe evidence can be gathered up to a week (or 5 days as I have been informed by some resources) after the rape has taken place. But the earlier evidence is gathered the better the sample.

Furthermore, rape can result in internal trauma, a variety of STIs (including HIV which can be prevented if anti-retroviral drugs can actually prevent the transmission of the disease), and Pelvic Inflammatory Disease (PID). Give the person you are supporting this data, it may encourage them to make the decision to access medical support.

Following on from being raped I developed PID. I was asymptomatic for a number of weeks before the infection became obvious and damage was done to my body due to this delay and this has led to infertility.  I’m not sure what can be done to avert this other than making sure you’re vigilant, and making sure you regularly attend medical appointments, but these are important steps to take.  NHS Choices lists these symptoms of PID:

  • pain around the pelvis or lower abdomen
  • discomfort or pain during sexual intercourse that is felt deep inside the pelvis
  • pain during urination
  • bleeding between periods and after sex
  • unusual vaginal discharge, especially if it is yellow or green
  • fever and vomiting
  • pain in the rectum (back passage)

“You may have PID without being aware of it. Sometimes there are no symptoms at all or symptoms may not be obvious. For example, you may only experience mild discomfort”

 

Accessing support from clinics is helpful for a number of reasons:

          Avoiding pregnancy

          Gathering DNA evidence

          Assessing internal injuries

          Treatment and prevention of STDs, including HIV

          The treatment of any other injuries

          A gateway for accessing further support

 

Criminal Proceedings

As outlined above, there are certain steps that can be taken, if possible, which can aid in a successful conviction. However, many people may not wish to pursue this line. This can be as a result of, amongst others, not wanting to have DNA recovered, personal affiliations with the attacker, a fear of disbelief, a fear of intimidation, or not feeling strong enough to go through the process.

In a perfect world all victims of rape would pursue criminal proceedings, the justice system would reflect the needs of victims and all rapists would be put behind bars, but this is not a perfect world. The decision of whether or not to access this avenue is deeply personal and should not be forced.

When I was raped I was a single parent and my attacker knew where I lived. I was petrified of recriminations, and to this day I do not regret my decision not to seek criminal proceedings. However one professional and one friend had suggested that I was selfish for not seeking this avenue. My friend went so far as to say that other women would be raped because of me. This sort of attitude is completely unhelpful and engages in victim blaming. A rape survivor should never be blamed for the actions of their attacker. Whilst it is absolutely fine to encourage a survivor to access criminal proceedings, emotional blackmail should never be used.

A fear of unsuccessful conviction may prevent many people from initiating criminal proceedings. There are a lot of myths about rape convictions, and I certainly believed them until I was alerted to this article by a friend. It might be helpful to share this article, or the facts contained within it, to the person you are supporting http://www.guardian.co.uk/commentisfree/2012/mar/19/myths-about-rape-conviction-rates .

 

Victim Blaming

One of the worst things you can do to a victim of rape is to engage in victim blaming, yet it happens so often. Victim blaming is when the emphasis is placed upon the victim rather than the perpetrator. Various reasons people have given for others becoming the victims of rape include: their outfit, their alcohol consumption, their shoes, their trust, and their sexuality. There is only one reason why somebody becomes the victim of rape and that is because someone has made the decision to rape them.  Rape is about control and domination; it is not about sexual desire or the availability of the victim.

I was raped by my friend when I went to have dinner with him and several others. Following this I was asked by my children’s Health Visitor if I often “engaged in risky behaviour”.  Eating dinner with a friend could never be classed as risky behaviour unless the friend was Hannibal Lecter, but this is the reality that many victims of rape have to face. More importantly I would like to see a world where someone walking down the street naked is not seen as “risky behaviour” because rape is never the fault of the victim. Other ways in which I have experienced victim blaming are the assertion that I “shouldn’t have been alone with a black man” and “you forgot your rape alarm”. This is just a selection of numerous instances, each more ridiculous than the last.

I believe victim-blaming happens because people do not want to accept helplessness, nor do they want to believe that the world is a horrible place. It is so much easier to blame the victim than it is to blame the rapist and the culture which created them.

Ongoing Support

It is at this point I am going to put the term “victim” to the side and introduce the term “survivor”. I’ve used the term victim up to this point because
initially when you experience rape you feel as if you are in an incredibly weak position, but once this period is passed I think it is important to use the discourse of surviving. We will have our vulnerable moments, but for every day that passes that is another day survived.  Rape removes a person’s power, we need to do the best we can to support people in getting that back.

Nobody responds the same way to rape. There is no wrong way or right way to behave once you have been the victim of rape.  Now many will tell you differently, but most of these people are engaging in what is known as rape apologism.  They’re the sort of people who say ridiculous things like “I don’t believe her/him because she/he  didn’t react properly”. I think most of us have seen the films and television programmes where a woman is raped (and it is almost ALWAYS a woman in film) and she takes a boiling shower and rubs her skin raw and then recoils at everyone’s touch. Yes, some people do respond this way, but it is not the only response. We’ve seen this attitude perpetuated by those engaging in Assange debates who say that he couldn’t possibly have raped those women because they didn’t respond properly, indeed one of them even went so far as to “remain in contact”!

After I was raped I didn’t respond in the above mentioned way. In fact I read Erica Jong’s Fear of Flying and acted in the opposite way to the above. I decided that I would no longer be a victim; that others would no longer control my sexuality for me. I’d only slept with four people before I was raped and afterwards I slept with that number again in a very short space of time.  I was in a state of mania. It was a sort of sub-conscious refusal to accept what had happened to me. I began to play a character in my head, The Femme Fatale. Who wouldn’t rather be that character than the “victim” who had her control and dignity brutally snatched away? It didn’t last though. I couldn’t keep it up. We can’t run from our problems forever and I fell apart. This falling apart was aided by my belief that I was a “freak”, after all, “who responds to rape like that?!” I had never seen such a reaction before, women had hot showers and became figurative eunuchs, didn’t they?

 

It was at this point that I began to read about the various responses people have to being raped. I was surprised about the many different ways people responded to this trauma. A book that I would particularly recommend to those who would like to know more is an anthology of people’s experiences and reactions to date/ acquaintance rape, (or as I prefer to call it, plain and simply, Rape), entitled, “I Never Called It Rape” by Robin Warshaw. You can find out more about it here: http://www.goodreads.com/book/show/242407.I_Never_Called_It_Rape .

 

 

I am including this from the comments section as I believe it is incredibly important that people see this:
” One particular thing that may lead people to be doubted is orgasm during rape. It is neither rare, nor proof that you were not raped. People orgasm differently, and for some of us the physical stimulation is enough. It does not mean you wanted the rape, or enjoyed it, or that it was not rape.

http://www.thenation.com/blog/169474/how-body-reacts-sexual-assault#

According to this piece 21% of rape victims orgasm during rape, or experience some form of sexual arousal. This can be devastating and leave them feeling as if they have no control whatsover, as a nurse says “even their bodies have let them down”

Many people who experience rape go on to develop PTSD. This is a horrible condition which can lead to a variety of symptoms including: flashbacks, panic attacks,  insomnia; irritability or outbursts of anger; difficulty concentrating; hyper vigilance; and feelings of fear and helplessness. Triggers are things that remind the survivor of the event and provoke these symptoms. There are a wealth of triggers out there and each case will depend upon numerous factors including the nature of the attack, but triggers can include: witnessing violence, discussions of rape (even this article), films which show rape scenes, victim blaming, and intimate touch. Because triggers are incredibly personal though even a certain song, item of clothing, or smell can trigger symptoms of PTSD. One of the worst triggers for my PTSD symptoms is a certain strip of road I had to travel down after I was raped, and is unfortunately also unavoidable. PTSD can begin at any time. It could start just after the attack or it can begin decades later. Please do not denigrate the experience of a survivor by assuming time should make them “get over it”.

A practical way of supporting someone with PTSD is to help them avoid triggers. Ask someone if you can hug them before you do, or (as my husband does) check that films do not contain rape scenes. Even checking for triggers in newspaper articles can be of practical help. Be open to supporting the survivor in any way you can. Asking somebody what they would like you to do if their PTSD is triggered can be helpful for both you and the survivor. Some survivors find being held helpful, whereas I find that my need for personal space increases immeasurably.

 

When you are supporting someone with PTSD patience is essential. If someone experiencing PTSD becomes verbally aggressive to you please do not take it personally, it isn’t aimed at you. Please understand that many people who have experienced rape have difficulty with intimacy. Ever since my PTSD symptoms began (about 2 months after I was raped) play fighting or my partner simply trying to hug me in a certain way can trigger symptoms of PTSD. It can be difficult not to feel offended when someone you care about cannot cope with you holding them or being physically intimate with them, but it is honestly not aimed at you. Understanding and patience can go an incredibly long way.

 

When supporting a rape survivor it is important to listen to them. If they want to be left alone, and you do not think they are at risk of harm, then give them space. If they want to talk about it then listen to them, but remember you cannot solve this for them. Reassure them that you will continue to support them but be aware that that is all you can do. A survivor may need years of support. Time helps scars to fade but they do not ever truly disappear. Understanding this will help you to avoid placing unrealistic expectations upon a survivor.

 

Useful links

Rape Crisis UK http://www.rapecrisis.org.uk/ 0808 802 9999

Samaritans http://www.samaritans.org/ 08457 90 90 90* (UK) 1850 60 90 90* (ROI)

 

 

 

The Feminine Mystique Redux

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In 1963 Betty Friedan wrote the movement provoking book The Feminine Mystique. Forty-nine years on women have seen many changes for the better. Women are leaving the home and have access to careers. They have more options than motherhood and indeed are choosing to start families later. Many women receive university educations, and have an increasing role in politics.

Yet, we can ask if life for women has changed as much as it should have?

All those years ago Friedan pondered, “Each suburban wife struggles with it alone. As she made the beds, shopped for groceries, matched slipcover material, ate peanut butter sandwiches with her children, chauffeured Cub Scouts and Brownies, lay beside her husband at night- she was afraid to ask even of herself the silent question– ‘Is this all?”

Numerous sources suggest the situation has little changed for many women. Almost 50 years on and women are spending more time with their children than they were during the second-wave feminist movement. The Family and Parenting Institute asserts that in 2002 mothers were actually spending three times more time with their children than in 1972.  The CoupleConnection.net suggests that women spend more than two and a half hours per day doing household chores compared to an hour by men. The British Attitudes Survey suggests this is not simply down to a woman’s working hours, showing that women in part-time work are just as likely to spend as much time on housework whether they work part-time or are not in paid employment.

The way in which women are seen as “chief, cook and bottle washer” is consistently evident within advertising. A recent advert for the cleaning product Flash showed the last few decades of adverts condensed into one.  In each advert it was a woman who was shown to be responsible for all housework duties. We’re reminded of Friedan’s statement, “No woman gets an orgasm from shining the kitchen floor.” Men apparently are only allowed to appear in advertisements for cleaning products for the purposes of dramatic irony, the point being that we all know men cannot really perform such tasks!

The slogan for the frozen food shop “That’s why mum’s go to Iceland” is one amongst many examples of everyday sexism. Perhaps the most surprising thing about ASDA’s recent Christmas advertising campaign is that their sexist advert, showing all household duties as women’s work, actually resulted in an uproar.

Friedan remarked, “In almost every professional field, in business and in the arts and sciences, women are still treated as second-class citizens. It would be a great service to tell girls who plan to work in society to expect this subtle, uncomfortable discrimination–tell them not to be quiet, and hope it will go away, but fight it. A girl should not expect special privileges because of her sex, but neither should she “adjust” to prejudice and discrimination” We can celebrate that women now achieve academically. Indeed, in 2010 women were more likely to find a graduate position than men. Why then, is it, that we still see a gender pay gap? The Fawcett Society predicts that there is still a 14.9% difference between the amount women and men are paid for the same job and the situation is at risk of worsening as women are pushed from the public to the private sector, where the gender pay gap is over 20%.

Friedan was discomfited by the world she saw around her when she said, “When she stopped conforming to the conventional picture of femininity she finally began to enjoy being a woman.”  Yet now women are fetishising the world of femininity which Betty Friedan sought to expose as a prison for women. A quick search on Google will reveal the extent to which women seek to emulate the fashions of the overtly feminine 1950s housewife.  Recently shops like Next have dedicated whole lines to selling retro kitchenware and the moniker “domestic goddess” is well known in our vernacular. It is as if women have decided to idealise their own oppressions. Feminists have siezed burleque and pole dancing as signs of empowerment, and whilst one should be careful not to oppress women’s rights to make their own choices, one could also be forgiven for agreeing that there is little distinction between what one woman sees as empowerment and the other oppression. Almost 50 years on from The Feminine Mystique should there not be less focus upon a woman’s sexual capital?

The term post-feminism suggests that the movement is over. The reality is far different. The feminist movement still rages on in various guises. One in four women still experiences sexual violence, one in four women will experience domestic violence. The glass ceiling is still firmly in place and women make up only one-eighth of our current cabinet. With such little change women must continue to fight until true equality has eventually been achieved.

The DM and Victim Blaming

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In an article about Steven Messham the Daily Mail have resorted to victim blaming of the highest order.In their article they have defiled the character of Messham, undermining every statement he has made about child abuse as fantasy. He has been handled with a complete lack of compassion and understanding.

In their incendiary article the testimony of all survivors from Bryn Estyn has been called into question. They imply that the witness testimonies of the survivors is unreliable due to the many criminal convictions between them. This completely loses sight of all links between children in care and criminality. It does not mean that their numerous statements which confirm each other should be disbelieved.

We all know that the Daily Mail likes to antagonise and indeed have seen the paper’s founder, Lord Northcliffe’s statement about a daily piece of hate. But victim blaming, and denial of abuse to this extent is unforgiveable. Is it any wonder that survivors find it hard to come forward when they risk opening themselves up to this? Many a cruel or ill-informed person, often on Twitter, has implied that the survivors of Saville’s abuse have only come forward because they are expecting a pay out. Surely it is evident that people will often only come forward when there is strength in numbers?

The Mail has published several articles about paedophiles and abuse yet seems completely oblivious to the part they play in creating a culture of abuse. One such incident was an article they published about a woman who had been raped yet it focused on how much she had had to drink. They write articles about the sexualisation of children yet other articles are guilty of doing just that. It is such hypocrisy which helps to create the culture which leads to the crimes they report.

The Messham article, amongst others, supports the culture which tells survivors it is not safe to come forward. It supports a culture of disbelief which has led many a survivor to struggle in silence, for what, as we have seen, can be decades of trauma. It is a culture which tells survivors that they will not be believed, yet if they are they will nonetheless be blamed for the abuse they have suffered. This culture allows abusers, molesters and rapists to feel safe in the knowledge that they will not have to pay for their actions. How many fewer rapes and abuses would there be if this culture ceased to exist? It is this culture which makes me want to fight back, and say to all survivors of rape and abuse, “I believe you”.

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*I have included screenshots of the article in good faith, and have included appropriate links and citations. If I have in anyway contravened copyright I will happily remove the images from my blog. The original article appears here www.dailymail.co.uk/news/article-2231212/A-victim-delusions-Astonishing-story-BBC-DIDNT-tell-troubled-star-witness.html

Shades of Anorexia (TW)

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This is going to be a hard post to write but I’m so upset by an article which has appeared in the New Statesman and the way in which it conveys eating disorders I feel motivated to write it.  In her article Rachel Cusk illustrates people who suffer from anorexia as attention seekers: people who wish to become highly visible. She also paints anorexia as a purely female phenomenon. At one point she goes so far as to describe an anorexic person as a “68 lb tyrant” who seemingly demands someone must feed her as a means of controlling their support team. I’ve suffered from remitting and relapsing eating disorders since I was 14 years old. A close family member also suffered from a severe eating disorder and almost died as a result. I do not recognise the descriptions provided by Cusk at all.

There are many reasons why people become ill with eating disorders. Sexual assault is one such cause. Many people wish to desexualise themselves and disappear. The last time I was ill 2 years ago followed a rape and subsequent period of severe ill health, possibly aggravated by complications with Pelvic Inflammatory Disease. I felt out of control and vulnerable. Not eating was a secret. I did not wish for it to make me more visible. I wanted to disappear. I was not even scared of the thought of dying, highlighting the extent of my desire to just stop existing. It is true that not eating made me feel a sense of achievement.  I had controlled my body, rather than had that control taken away from me as I had experienced. It was fuelled by self-hatred rather than self-promotion as Cusk seems to imply. Palpitations, constantly feeling cold and light-headed, and the inability to sleep were simply the physical manifestations of the pain I felt emotionally.

I was hospitalised in a psychiatric unit. My attitude towards food was not one of calorie counting. I was scared of eating. Food petrified me. It was quite literally a phobia. They wanted me to drink something called Fortisip/ Fortijuice which are incredibly sweet calorie and nutrition laden supplement drinks. Because my mind was aware it was the alternative to food I couldn’t face letting it pass my lips. Even passing the dining hall filled me with panic, the smell disgusted me and made me feel nauseous. They wanted me to drink the food replacement drinks in front of them in my room. The idea of them watching me made the whole situation worse. Eventually after weeks of wrangling with my care team my husband convinced them to allow me to drink them in my room alone. I was supposed to drink 4 bottles a day minimum. At most I managed to drink half a bottle 3 times a day, I believe this was the equivalent of 300 calories, and I cried after each one. Once they took me to the eating hall to try an apple. I wouldn’t enter until everyone else had left. It was just me and one nurse. The smell from the previous mealtime overwhelmed me. Before the plate with the apple was put infront of me my legs were shaking in uncontrollable terror. I managed with shaking hand to cut a slither of apple. This was the most contact I had had with food in weeks. The feel of it in my mouth was grainy, like sand or powder. After just a few seconds I broke down. I couldn’t go on. Not eating made me feel like a failure. This was not a tantrum, it was panic. It was not petulant or controlling behaviour. I did not demand attention, I deplored attention. It was the manifestation of a traumatised mind.

Of course my story is only one of many, there are numerous reasons why people suffer from eating disorders, and it is by no means gender specific. The causes and the experiences are many and should not, as Cusk has attempted, be reduced and universalised. The real life experiences of people with eating disorders far exceed Cusk’s monolithic and seemingly psychoanalytical, and overtly poetic, descriptions. Many eating disorder sufferers cannot neatly be compartmentalised as only possessing a simple diagnosis. Categorisation can be anorexia nervosa, bullimia nervosa, binge eating disorder, or EDNOS (which means eating disorder not otherwise specified, this could be because the person with the ED suffers from both anorexia and bullimia symptoms or does not fulfill the weight criteria of the anorexia nervosa category). These shades of grey seem to become very lost in Cusk’s representation.

The Minnesota Experiment under controlled conditions studied the effects of malnutrion upon a group of 36 physically and psychologically healthy young men. It was found that many of the symptoms and behaviours which are associated with anorexia and/ or bullimia, such as a pre-occupation with food, collecting recipes and a fixation with the eating habits of others; hoarding (which has been seen in anorexia patients); ritualistic behaviour around food (Cusk’s “feed me” springs to mind); bingeing; self-induced vomitting; feelings of guilt and shame; anger; and self-disgust inter alia were the result of malnutrition. Cusk’s poetic descriptions of anorexia may look pretty on the page, but clearly many of the behaviours she sees as resultant from a seemingly petulant, controlling and diva-like mind are infact the psychological symptoms of starvation.

Please do not believe Cusk’s thickly worded and damning descriptions of people with eating disorders. “We” are not one-size fits all. We are not all women. We are not all attention seekers and we do not wish to lash out and harm everyone around us. There are so many nuances it is impossible for Cusk or I to come up with a universal “Anorexia Statement”. Many people with anorexia aren’t trying to say anything at all. I had no message for the world. Anorexia is a mental illness not a “statement”.

Guest post by @signsavelives Please Read

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Guest post by Lynn

My name is Lynn, I’m 60 years old and I’d like to share my son’s illness with you all to try and help you understand the predicament thousands of others like my son are faced with next year, regarding DWP Benefit Reform for the sick and disabled.

My youngest son aged 40 has suffered from Paranoid Schizophrenia and emotional instability Personality Disorder since the age of 18. I have lived the illness with my son, the highs, the lows, and numerous hospital admissions over the years. My son had another very bad psychotic breakdown in August 2010, which resulted in a section 3 of the Mental Health Act and he has been in hospital care for 2 years this time.

Although my son is nearly 40 years old, mentally he is only 15, he is immature and extremely vulnerable and easily exploited. Therefore needs much support and care when living in the community.

My son, like thousands like him, who suffer from a Severe and Enduring mental health problem, has no voice when it comes to the DWP or ATOS, he like others wouldn’t be able cope with being interviewed next year 2013 when the Disability Living Allowance changes to Personal Independence Payment and he has to be assessed by DWP.  He, again like many others, who suffer severe mental illness, doesn’t believe he is ill, and just wants to be left alone.

The severely mentally ill will be hugely disadvantaged by the GOV/DWP/ATOS putting them through this ridiculous assessment in 2013, particularly people who don’t believe they are mentally ill, who to anyone who doesn’t know them, or, their background, can come across as fine, strong, healthy people, and may not appear ill at all, or, that they need help and support in their day to day lives, keeping them and others safe in the community, they won’t see the risks for the mentally ill, and many won’t have family or support to go with them to the assessments!

My son would tell an assessor he wasn’t ill, and say he just wanted to be left alone to get on with his life, which would see him losing his DLA/PIP for sure. Yet in reality, my son cannot get on a bus or use any public transport due to his paranoia that people are staring at him. He would get upset and get angry, probably end up getting in to trouble, because his self-esteem is low as is his confidence, and he thinks the world and his mate are against him.

To avoid this kind of stress and a way of coping, he needs taxis to anywhere he has to go, shopping, to any appointments he has. It is the only way he can cope with going out, and without his DLA/PIP he would be housebound and have no quality of life at what so ever.

If mental health sufferers lose their DLA/PIP benefit, (same as all disabled), it will place a huge extra burden on family, carers and friends emotionally and financially to provide the care and support and finance they need, which most of us couldn’t afford! All to often family/friends who are carers, as in our own case, are ill, worn down.

I was diagnosed 2 years ago with Moderate to Severe ME/CFS and told by my consultant it was due to being a carer for 22 years. My husband is 76 years old, in bad health, tired, it catches up with us and having to provide even more care to our loved ones should they lose their benefit, will put carers at more risk mentally and physically.

Because I understand the plight of the severely mentally ill, and have insight to the wider implications of what the GOV/DWP actions will cause for the sufferer and family, and carers, I have started this e-petition asking the Government to Exclude all severely mental ill from the 2013 DLA/PIP assessments, because what the GOV/DWP are doing is the biggest travesty and betrayal to our sick and disabled who in most cases have already proved their illness/disability with medical evidence and assessments they have already had to go through to get their DLA in the first place, and many like my son, were awarded DLA for an Indefinite period because they have provided proof their illness/disability is a life long one!

There are a number of e-petitions about Benefit Reform, I have signed them all which everyone should do to try and help protect all disabled, however, this petition is specifically to try and get the severely mentally ill EXCLUDED from the assessments because they do not have a strong enough voice and they will be hugely disadvantaged as I said before.

As a mum of a severely mentally ill son, and on behalf of all other sufferers like him, I know these assessments will cause SUICIDES in our most vulnerable, and cause huge hardship all round, please may I respectfully appeal to your good hearts and souls to support this e-petition and sign it, to share it with family & friends, on twitter/face book accounts, groups you may belong to, as I need 100,000 signatures to stand any chance of getting the House Of Commons to debate this, and at the moment I only have 2,456 signatures,  we only have until March to get the 100K!

Thank you all for taking the time to read this my plea, and I very much hope you will feel able to sign this petition.
http://epetitions.direct.gov.uk/petitions/35092

Kind Regards

Lynn
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You can follow Lynn on Twitter  > @SignSaveLives

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